Useful Websites

There  are a very wide rage of websites on the internet that have useful information for people with MND and their carers.  To make sifting through them a bit easier, we have provided direct links to some of the most useful.  Let us know if you have some favourite ones that we don’t know about!

MND Organisations in Other Countries

These have a wide range of generally useful information

UK MND website           Click here >>

Scottish MND Association  Click here >>

South Australia MNDA   Click here >>

New South Wales  Click here

Victoria (Australia) Click here >>

Research

MND Research Institute of Australia  Click here>>

MND Association of Australia research site Click here >>

UK MND website research site Click here >>

MND Scotland research links Click here >>

NZ Cochrane Library    Click here >>

Google Alerts: Set an alert to email you when a reference to MND/ALS appears in the media around the world.  Click here >>

Linking up with Others

Bill’s Journey >>

Mathew Fraser’s Charitable Trust website.

Mathew lives in the South Island of New Zealand and has a very informative website.  Click here >>

Ozpals :

Online Motor Neurone Disease Support Group for people by people with MND/ALS who live in Australia and New Zealand.  Click here >>

Health Related Sites

Hospice NZ

“Hospice is a philosophy of care, not a building”

Including current and past newsletters  Click here >>

New info centre for terminally ill patients and their families and friends, just launched in the USA

Click here  >>

Patients Like Me:

BUPA

Click here >>

Health links and other general information

Click here >>

MoH Funded Support Services

Click here >>

… and here >>

District Health Boards

Click here >>

For Carers

Carers.net.nz

Food supplies :

Benefit Claims

WINZ

Information on claiming benefits  Click here >>

For Older People

Eldernet

The Eldernet site includes a nationwide database directory and comprehensive information about community groups and organisations, home help services, rest homes, retirement villages, residential care, private hospitals, dementia care, public hospitals and other third age services for seniors.

Mobility