Living Better for Longer

Although there is no cure for motor neurone disease yet, research has shown there are some things you can do to live better for longer with MND.

How you manage your earlier MND symptoms may affect how symptoms you later develop can be managed.

Early discussion about symptom management will help you to plan ahead.

LIVING BETTER FOR LONGER

Much of the information in this section comes from MND Australia's evidence-based fact sheets, which explore interventions that research has shown to help people live better for longer with MND. We hope you will find it useful. Please contact your Field Worker for further advice and guidance.

Multidisciplinary care helps you live better, and may help you to live longer, with MND.

Research has shown that health professionals can give you better care and advice when they are knowledgeable about MND and have a coordinated, multidisciplinary approach to your care.

People living with MND are likely to need advice about mobility, communication, breathing, nutrition, managing other symptoms and getting community support. Multidisciplinary care occurs when health professionals, from different disciplines, work together to address as many of these needs as possible.

A multidisciplinary care team for people with motor neurone disease usually includes a GP, allied health professionals (such as a dietitian, occupational therapist, physiotherapist, and speech-language therapist) and local palliative and community workers. (For more information, see Health Professionals Who Can Help).

Multidisciplinary care provides you with a direct link to one contact person, who is usually your MND NZ Field Worker. (In some DHB areas you may also be assigned a nurse coordinator.) Your Field Worker can advise you about regular review of symptoms and coordinate multidisciplinary care from your team of health professionals. They will help you get information, support and referral to the right services when your needs change, so that any difficulties can be dealt with promptly.

The above information comes from MND Australia's evidence-based fact sheets. See the relevant Fact Sheets below:

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