What are some of your best tips and tricks for coping with the challenges of MND?
Please share them with us, so we can share them with other New Zealanders who are living with MND, now and in future.
MND Scotland has put together a great list of hints and tips for:
MND England, Wales and Northern Ireland also has some useful publications about daily living with MND, including sex and relationships, available here.
Hints and tips can also be found by joining an online community.
Please share with us what you learn!
The MyTube website has useful videos about feeding tubes for people with MND: http://mytube.mymnd.org.uk/
The Ladyman family have shared some tips in the videos below. Neil's wife Olivia Ladyman says the couple chose to face Neil's prognosis head-on. "There's no point hiding and not discussing things because it's not going to go away," says Olivia in the following video, where the couple share tips about keeping Olivia's role as a wife separate from that of carer and support person.
In the following video, father of three Neil Ladyman shares how MND isn't stopping him from living his life to the full. Neil includes his tips for keeping positive and says one of the most important things people with MND can do is to get out of the house and keep connected to friends and family.