MND NZ’s Support Workers help people with MND live better for longer. All over New Zealand, our Support Workers help people with MND access the right health services at the right time, provide up-to-date information, and offer both practical and emotional support.
MND NZ is a small registered charity that also works to increase awareness and understanding of MND in New Zealand. We believe in supporting MND research.
Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells – neurones – controlling the muscles that enable us to move, speak, breathe and swallow degenerate and die.
With no nerves to activate them, muscles gradually weaken and waste away, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing. The patterns of weakness vary from person to person.
ALS (amyotrophic lateral sclerosis) is the most common type of MND. MND is known as ALS in some countries.
The number of people living with MND at any one time is approximately one in 15,000
The New Zealand Motor Neurone Disease Registry was launched on on Monday 22 May 2017, just eight months after 4000 participants in 14 fundraising walks all over New Zealand raised the funds to establish the Registry. Dr Claire Reilly, the coordinator of the nationwide Walk 2 D’Feet MND fundraising events, […] READ MORE
On Friday 5 May, the US Food and Drug Administration (the FDA) announced its approval of the drug ‘edaravone’ for the treatment of MND. This is exciting news. The FDA is the organisation that approves medication in America according to its safety and effectiveness. Edaravone is the first MND medication to […] READ MORE
DAVID OLIVER BEACON AWARD
Honour, acknowledge and celebrate individuals, groups or services providing a positive contribution to service, care, improvement, or innovation in support of people with MND.
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